Validating a model of chronic illness and family caregiving
A high rate of adherence and participant satisfaction with the multi-modal intervention is also hypothesised, with delivery both acceptable and feasible to stakeholder organisations.
Finally, the intervention is hypothesised to be cost-effective when compared with usual care, when considering health outcomes for family caregivers.
This study was codeveloped with key stakeholders or partner organisations: Macular Disease Foundation Australia (MDFA) and Carers NSW.
MDFA is the national peak body representing people with macular disease, their families and caregivers, and Carers NSW is a statewide organisation representing informal caregivers.
This could also add to the burden and distress experienced by the caregiver.
Secondary outcomes include improvements in caregiver mental well-being, quality of life, fatigue and self-efficacy.
Introduction Age-related macular degeneration (AMD) is a leading cause of blindness and low vision among older adults.
Previous research shows a high prevalence of distress and disruption to the lifestyle of family caregivers of persons with late AMD.
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